Contact Us

If you have any questions or would like to discuss the project further please contact us using the enquiry form or contact information below.

  • Email:
  • Phone:
  • +44(0) 121 371 4770
  • Coordinator:
  • INPDA Chairman:
  • UHB Project Manager:
  • INPDA Project Manager


  • Room 3-12, Office 10, 3rd Floor
  • East Block, Heritage Building
  • Queen Elizabeth Hospital
  • Mindelsohn Way,
  • Edgbaston, Birmingham
  • B15 2GW, England

Contact us form
EU Logo INPDA Logo

The registry is owned by the International Niemann-Pick Disease Registry Project, and is managed by an international consortium of professionals and is hosted at the University Hospitals Birmingham NHS Foundation Trust (UHB) in the UK. The project to develop the INPDR arises from the NPDR project which has received funding from the European Union, in the framework of the Health Programme.