What is the INPDR?
About the registry
As a disease-specific registry, the INPDR collects information about the health and experience of Niemann-Pick patients, including patients with ASMD Niemann-Pick types A and B, plus Niemann-Pick disease type C.
The INPDR consists of two electronic databases:
The INPDR is actively supported by patients, clinicians, patient advocates and researchers from over 20 countries across 5 continents. Each supporter is incredibly important – helping us collect valuable demographic information, diagnostic results and treatment and health outcomes data.