Contact Us

There are a number of ways you can get in touch with us whether you're a patient or clinician who would like to know more or you are interested in accessing INPDR data for research - we'd love to hear from you.

You can also keep up to date by following us on Facebook, Twitter and LinkedIn.

Find out more

If you have further questions regarding the International Niemann-Pick Disease Registry (INPDR) you can get in touch with one of the team:
    • Toni Mathieson
    • Registry Management Team & Trustee
    • Suite 2, Vermont House, Washington, Tyne and Wear, NE37 2SQ
    • toni.mathieson@inpda.org
    • +44 (0) 191 4150693
    • Shaun Bolton
    • Registry Management Team - Data Management
    • Room 3-12, Office 10, 3rd Floor East Block, Heritage Building Queen Elizabeth Hospital Mindelsohn Way, Edgbaston, Birmingham B15 2GW, England
    • shaun@inpda.org
    • +44(0) 121 371 4770
    • Jackie Imrie
    • Registry Management Team - Recruitment Specialist
    • INPDR, Suite 2, Vermont House, Washington, NE37 2SQ
    • jackie@npuk.org
    • Angela Wilson
    • Registry Management Team - Communications
    • INPDR, Suite 2, Vermont House, Washington, NE37 2SQ
    • angela@inpda.org
    • +44 (0) 7966 156106

Get in touch

As well as contacting one of the team directly, you can complete our contact form and we'll get back to you.

network

Join us

You can help to develop and enhance the registry by joining us

Sign up today

Useful links