For Patients

Latest updates

The INPDR is a collaboration between clinicians, scientists, researchers and patient associations across the world to collect clinical, genetic, diagnostic and outcome data from patients with Niemann-Pick Diseases (NPD).

Keep up to date with the latest news and developments from the INPDR and the wider Niemann-Pick Disease community here. You can also find us on Facebook and LinkedIn, however if you have more questions about the INPDR, you can find answers in our FAQs which we update on a regular basis.