There are a number of ways you can get in touch with us whether you're a patient or clinician who would like to know more or you are interested in accessing INPDR data for research - we'd love to hear from you.
You can also keep up to date by following us on our social media channels.
Find out more
If you have further questions regarding the International Niemann-Pick Disease Registry (INPDR) you can get in touch with one of the team:
Registry Management Team & Trustee
Suite 2, Vermont House, Washington, Tyne and Wear, NE37 2SQ