Registry services
Press Releases
- In this section:
- Registry services
- Resources & Publications
- Press Releases
This dedicated space serves as a repository for our latest official communications and announcements. In this section you can find relevant press releases which detail significant developments, initiatives, and insights pertinent to the Registry.
- Evelina London Children’s Hospital Joins the INPDR Clinician Reported Database 24 February 2026
- The International Niemann-Pick Disease Registry Welcomes Soroka Medical Centre as the First INPDR Site in Israel 17 April 2025
- International Niemann – Pick Disease Registry Announces Departure of Chief Executive Officer Conan Donnelly 18 March 2025
- INPDR Expands in South America with New Partnership at Casa Dos Raros in Brazil 3 March 2025
- The INPDR Expands to a New Continent with Site Launch in Melbourne, Australia 15 October 2024
- The Ara Parseghian Medical Research Fund awards grant to the International Niemann-Pick Disease Registry 29 July 2024
- C-Path Forms Data Collaboration with International Niemann-Pick Disease Registry (INPDR) to Propel Niemann-Pick Disease Research Forward April 17, 2024
- International Niemann-Pick Disease Registry announces new research showing the impacts of Olipudase Alfa on adults with ASMD: The Patient- Reported Experience 11 March 2024
- International Niemann-Pick Disease Registry announces new research collaboration using real-world data to evaluate the treatment effects of olipudase alfa to manage Acid Sphingomyelinase Deficiency (ASMD) 24 January 2024
- INPDR Gateway Press Release - 1st June 2023
Looking to use INPDR data in your research?
Learn how to request access, review our data access process, and understand how we support researchers in generating high-quality evidence. Visit Supporting Research page.