Registry services
Press Releases
- In this section:
- Registry services
- Resources
- Publications
- Press Releases
This dedicated space serves as a repository for our latest official communications and announcements. In this section you can find relevant press releases which detail significant developments, initiatives, and insights pertinent to the Registry.
- International Niemann-Pick Disease Registry announces new research showing the impacts of Olipudase Alfa on adults with ASMD: The Patient- Reported Experience
- International Niemann-Pick Disease Registry announces new research collaboration using real-world data to evaluate the treatment effects of olipudase alfa to manage Acid Sphingomyelinase Deficiency (ASMD)
- INPDR Gateway Press Release - 1st June 2023