Registry services
Press Releases
- In this section:
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- Press Releases
This dedicated space serves as a repository for our latest official communications and announcements. In this section you can find relevant press releases which detail significant developments, initiatives, and insights pertinent to the Registry.
- The INPDR Expands to a New Continent with Site Launch in Melbourne, Australia
- The Ara Parseghian Medical Research Fund awards grant to the International Niemann-Pick Disease Registry
- C-Path Forms Data Collaboration with International Niemann-Pick Disease Registry (INPDR) to Propel Niemann-Pick Disease Research Forward
- International Niemann-Pick Disease Registry announces new research showing the impacts of Olipudase Alfa on adults with ASMD: The Patient- Reported Experience
- International Niemann-Pick Disease Registry announces new research collaboration using real-world data to evaluate the treatment effects of olipudase alfa to manage Acid Sphingomyelinase Deficiency (ASMD)
- INPDR Gateway Press Release - 1st June 2023