For Patients

INTERNATIONAL NIEMANN-PICK DISEASE REGISTRY

We collect and share patient and clinician data to improve the lives of Niemann-Pick patients and their families.

What does the INPDR do?

  • Shares information

  • Collates knowledge and insight

  • Improves research

  • Studies natural history

The INPDR is your opportunity to provide your experience of Niemann-Pick disease and be a part of positive change!

Patients and families can help develop and enhance the INPDR by signing up to the registry today.

Sign Up