For Patients

INTERNATIONAL NIEMANN-PICK DISEASE REGISTRY

A new concept in disease registries, improving care for Niemann-Pick Disease patients across the world.

What does the INPDR do?

  • Sharing information

    A new concept in disease registries

  • Gaining knowledge and insight

    Establishing the natural history of Niemann-Pick Diseases

  • Improving research

    Coordinating global research efforts

  • Enabling rapid diagnostics

    Making cutting edge diagnostic tests available to all

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You can help to develop and enhance the INPDR by signing up to the registry

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