We document the Niemann-Pick patient experience to advance research and improve lives.
By joining the INPDR and sharing your experience, you’ll be helping us improve disease understanding, influence patient care and support global research efforts.
Patients and families
Find out all you need to know about joining the registry, including how easy it is.
Discover how you can join other clinicians from around the world to make a difference.
Signing up is quick and simple and you receive full support from our team. Find out more, or start your sign up now.