We know that in the field of rare diseases and specifically Niemann-Pick Disease, there are clinicians and healthcare providers with unique insight and a determined commitment to improving their patients’ lives.
Clinician Reported Data is an essential part of the INPDR and coupled with Patient Reported Data the Registry can have a meaningful impact on understanding Niemann-Pick Disease, improving research and standards of care.
The joining process is simple and once you have access, you can use the website to log in, enter data, access support and contact us:
